Rare Disease Tool Kit

Hi Everyone

I wanted our followers to be aware of this amazing Tool Kit by Global Genes Project

The Rare Disease Tool Kit provides individuals with usable information on a variety of topics related to living with or advocating for rare disease patience.

Please take a look and explore this great Rare Disease Tool Kit

Your Team

The Metabolic Foundation


Hi My Name is Gemma, I am one of the founders. I am the wife to Adam, and mum to our boys as well as a retired Nurse. Hi My Name is Adam, I am one of the founders. I am husband to Gemma and father to our boys.

2 thoughts on “Rare Disease Tool Kit

  1. Very interesting details you have noted, regards for posting. “She had an unequalled gift… of squeezing big mistakes into small opportunities.” by Henry James.

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