Rare Disease Tool Kit

Hi Everyone

I wanted our followers to be aware of this amazing Tool Kit by Global Genes Project

The Rare Disease Tool Kit provides individuals with usable information on a variety of topics related to living with or advocating for rare disease patience.

Please take a look and explore this great Rare Disease Tool Kit

Your Team

The Metabolic Foundation


Hi My Name is Gemma, I am one of the founders. I am the wife to Adam, and mum to our boys as well as a retired Nurse. Hi My Name is Adam, I am one of the founders. I am husband to Gemma and father to our boys.

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