Ultragenyx FAOD Survey

The Metabolic Foundation supports Ultragenyx and Ultragenyx is currently conducting a survey to understand how LC-FAOD impacts people’s lives, iany patients or caregivers who may be interested, we would appreciate your help by completing the survey.

 Here is the link needed to complete the survey.   (www.FAODsurvey.com


Many Thanks

The Metabolic Foundation Team

Hi My Name is Gemma, I am one of the founders. I am the wife to Adam, and mum to our boys as well as a retired Nurse. Hi My Name is Adam, I am one of the founders. I am husband to Gemma and father to our boys.

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