Just one of those days, in my vlcad life

Yesterday my eldest boy went off on a 3 day school trip and as a mum who was already recovering from a relapse of my vlcad I knew I really shouldn’t of gone. However how could I not go and wave him off, so I did in the pouring of rain and got soaked through and cold. 

We all know that weather can affect us vlcadders, and that’s exactly what it did to me and today I am now suffering. 

I never really got much sleep last night as the pain was bad, and today I’ve laid on the sofa all day keeping up with pain relief and sos25 to prevent any hospital admission and metabolic crises. 

I will blog my updates as the days go on, but for now I’m resting and that is all I can do. IMG_20181016_134116

Hi My Name is Gemma, I am one of the founders. I am the wife to Adam, and mum to our boys as well as a retired Nurse. Hi My Name is Adam, I am one of the founders. I am husband to Gemma and father to our boys.

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