Unexpected fatigue

Having a rare disease where using the slightest of energy can cause severe tiredness known as fatigue. Today I woke up feeling very well in myself and decided to clean my work surfaces, with my favourite product called zoflora (all you hinch lovers will understand this). However for someone like me

Just one of those days, in my vlcad life

Yesterday my eldest boy went off on a 3 day school trip and as a mum who was already recovering from a relapse of my vlcad I knew I really shouldn't of gone. However how could I not go and wave him off, so I did in the pouring of

Weight loss journey with VLCAD

When I was first diagnosed with Vlcad I had already spent 8 months on steroids which put me around the 14 stone mark on the scales, and being only 5ft it was a very to look in the mirror and see such a change in me. After my diagnosis and settling

VLCAD Through A Mothers Eyes

Chapter 1 A Mothers Journey A mother just like any other mother, I had a great career as a registered Nurse working full time for my local GP practice and I am wife to Adam, Mum to Jamie aged just 3 years old and expecting our second son any day now. October 11th

Sheffield Children’s Hospital-Book Presentation

Amazing day meeting Dr Simon Olpin who is the Consultant Clinical Scientist in Inherited Metabolic Diseases and Camilla who is part of the team. We had the pleasure to be able to present this Metabolic book which is the latest version, which is a bible to them with helping to diagnose

Metabolic disorders week 2018

Raising awareness is key Please share and raise awareness for Metabolic awareness week 2018. https://m.facebook.com/story.php?story_fbid=2104439133133530&id=1636874399890008

Our Recent Fundraising Event in November 2017

The Metabolic Foundation would like to say a huge thank you to everyone who donated and took part in our fundraising event in November 2017, we raised a lovely £153.   Thanks again   The Metabolic Foundation

Children’s ward Christmas Donations 2017

The Metabolic Foundation would like to thank everyone who kindly donated gifts for our yearly Christmas donation to the children's ward, this year we managed bigger and better and purchased lots of new items and I know all the children will be very happy on Christmas day. Thanks again The Metabolic Foundation

September Newborn Screening Awareness

Raising Awareness is so important and we would like to share with you, that September is Newborn Screening Awareness Month. Please see the link below ☺ Thank you. https://m.facebook.com/story.php?story_fbid=1953862184857893&id=1636874399890008

A Metabolic cookbook

Hi   Please take a look at the link below for some great food and receipe ideas that are low fat and ideal with a metabolic condition. https://m.facebook.com/story.php?story_fbid=1928156040761841&id=1636874399890008 Thank you