September Newborn Screening Awareness

Raising Awareness is so important and we would like to share with you, that September is Newborn Screening Awareness Month. Please see the link below ☺ Thank you. https://m.facebook.com/story.php?story_fbid=1953862184857893&id=1636874399890008

A Metabolic cookbook

Hi   Please take a look at the link below for some great food and receipe ideas that are low fat and ideal with a metabolic condition. https://m.facebook.com/story.php?story_fbid=1928156040761841&id=1636874399890008 Thank you  

Fundraiser Total

The Metabolic Foundation would like to thank everyone who came and supported us, at our fundraiser on Saturday 4th March 2017. We raised an amazing £377.36p ☺ Thanks again The Metabolic Foundation Team ☺

Useful information for FODS

Hi Please take a look at the Link below and if you could participate, we would be grateful. Thank you.https://word-view.officeapps.live.com/wv/mWord.aspx?Fi=SDF285D75E6F27833D%211252&H=emul&C=5_810_BAY-SKY-WAC-WSHI&ui=en-GB&rs=en-US&wdo=2&wde=docx&wdp=3&su=-971133344036715715&ad=en-US&sc=host%3D&cy=canary&ak=t%3D0%26s%3D0%26v%3D%21ABAjI2PYiHcizsk%26aid%3D06ef09d8-6242-4ac8-b3c6-4746e7a41e3e%26m%3Den-gb&wdMobileHost=2

Christmas Donation To The Children’s Ward

Today we visited The Childrens Ward at Princess Alexandra Hospital in Harlow Essex, to deliver lots of christmas presents to all the children on the ward at christmas time. Thank you to everyone for all your donations, the children's ward were so grateful and we were also joined by a litter

Inherited metabolic disease in adults – published book

Hi All The Metabolic Foundation today caught up with The Metabolic Team at Addenbrookes Hospital, and with everyone's kind support we have been able to provide them with a very new published book which helps towards diagnosing of patients. This will make a great difference to many patients who are still awaiting

Useful Link For Patient & Carers

Hi All Ultragenyx have asked us to share this useful link, which you will find very useful. We liase with Ultragenyx regarding many FAOD information and Please do click the link below, thank you. http://www.FAODsurvey.com    

Newborn Screening

Thank you to this man many lives have been saved through newborn screening, and we are hoping in time more rare diseases will be added to the newborn screening system so many more can be saved. http://www.heraldnet.com/life/doctors-work-to-screen-newborns-passes-the-test-of-time/

Ultragenyx FAOD Survey

The Metabolic Foundation supports Ultragenyx and Ultragenyx is currently conducting a survey to understand how LC-FAOD impacts people’s lives, if any patients or caregivers who may be interested, we would appreciate your help by completing the survey.  Here is the link needed to complete the survey.   (www.FAODsurvey.com)    Many Thanks The Metabolic Foundation Team

The Metabolic Foundation Family Fun Day 2016

  The Metabolic Foundation Family Fun Day raised an amazing £612,16 We would like to thank everyone who came along to support us on this day, special thank you to Photographs by Allison for our amazing photos of our special day. Thank you to Newhall Rangers YFC for participating in our charity football