The weather is giving me a bit of a rough time

Today I thought I would start another blog as I've not wrote one for a while and it's not because I didn't want to, unfortunately since December I've been fighting with my chronic illness. Since Christmas I have been stuck in my house suffering chronic pain and fatigue, but I did

Winter viruses have begun

Suffering with a rare disease is hard enough daily for anyone, but when the colder months begin and the virus and bugs start to do the rounds it becomes harder for us. The last month my youngest who picks up every virus in the winter months thought he would be very

Unexpected fatigue

Having a rare disease where using the slightest of energy can cause severe tiredness known as fatigue. Today I woke up feeling very well in myself and decided to clean my work surfaces, with my favourite product called zoflora (all you hinch lovers will understand this). However for someone like me

Just one of those days, in my vlcad life

Yesterday my eldest boy went off on a 3 day school trip and as a mum who was already recovering from a relapse of my vlcad I knew I really shouldn't of gone. However how could I not go and wave him off, so I did in the pouring of

Weight loss journey with VLCAD

When I was first diagnosed with Vlcad I had already spent 8 months on steroids which put me around the 14 stone mark on the scales, and being only 5ft it was a very to look in the mirror and see such a change in me. After my diagnosis and settling

VLCAD Through A Mothers Eyes

Chapter 1 A Mothers Journey A mother just like any other mother, I had a great career as a registered Nurse working full time for my local GP practice and I am wife to Adam, Mum to Jamie aged just 3 years old and expecting our second son any day now. October 11th