In August will be a year the foundation was founded, and we thought the best way to celebrate and raise awareness at the same time would be a family fun day event.
Please do come along to our family fun day, we have so much for all the family to
Here is some useful information and resources for families & patients with metabolic disorders, I hope you find this very useful.
The Metabolic Foundation
I wanted our followers to be aware of this amazing Tool Kit by Global Genes Project
The Rare Disease Tool Kit provides individuals with usable information on a variety of topics related to living with or advocating for rare disease patience.
Please take a look and explore this great Rare Disease
We have some great news, The Hamilton Practice GP Surgery in Harlow Essex have published our foundation in their newsletter :)
Please take a look below.
The Metabolic Foundation would like to thank everyone who took part in our online auction, we are so delighted to announce that with all your help and support we raised an amazing £305.05.
Thank you all so much :)
Please take a look ☺
We are currently looking into organising a workshop around Education on Rare Disease
Ideally looking for October 2016, and would like to invite NHS Staff around the UK to attend our workshop on Rare Disease.
If any GP'S, Consultants, Nurses, Specialist Nurses and Health care Assistants would like to attend, please do
we are fundraising again, and have a great event coming up online through our Facebook page.
please do take a look and come join in the fun, all for a great cause, all Auction items are now loaded but we do have a few more to come next week.
see link below
We are holding a Metabolic family meeting and everyone is welcome, you will get to meet the team and other families with rare disease.
please click on the link below with all the details and we look forward to seeing you all there :)
As you may be aware that the last day of February each year is Rare Disease Day, where the world can raise awareness for all Rare diseases.
We held a Rare Disease Day coffee morning in Harlow, Essex which was a fantastic event and everyone who attended found the event